World-renowned cellist Julian Lloyd Webber pledges support for Action Duchenne

first_img AddThis Sharing ButtonsShare to TwitterTwitterShare to FacebookFacebookShare to LinkedInLinkedInShare to EmailEmailShare to WhatsAppWhatsAppShare to MessengerMessengerShare to MoreAddThis  22 total views,  1 views today AddThis Sharing ButtonsShare to TwitterTwitterShare to FacebookFacebookShare to LinkedInLinkedInShare to EmailEmailShare to WhatsAppWhatsAppShare to MessengerMessengerShare to MoreAddThis World-renowned cellist Julian Lloyd Webber pledges support for Action Duchenne Duchenne affects 3,500 people in the UK and about 40,000 people worldwide. It has no cure and is caused by mutations in the dystrophin gene that prevent correct reading of the genetic code, the result of which is that the essential muscle protein dystrophin is not produced. This results in progressive muscle wasting, severely limiting mobility in teenage patients (boys and men) and leading to premature death in their twenties from respiratory or cardiac problems (the heart muscle is directly affected by the genetic defect).Julian Lloyd Webber said; “I became aware of the wonderful work being done by Action Duchenne during my recent performances with the Edinburgh Youth Orchestra. I am so impressed by what they are achieving that I immediately offered to become a patron of the charity.“Even though there are so many ‘good causes’ vying for contributions I honestly believe that Action Duchenne deserves the greatest possible support.”Julian Lloyd Webber won a scholarship to the Royal College of Music at the age of sixteen, and went on to study in Geneva with the acclaimed French cellist, Pierre Fournier. Since then, he has collaborated with an array of musicians, from Yehudi Menuhin to Elton John, and has worked to encourage and support music education and excellence in the UK. In 1994, he was made a Fellow of the Royal College of Music.Nick Catlin, CEO of Action Duchenne said; “It is fantastic to have support in our cause to fund research and develop treatments for this devastating disease. Everyone involved in the Charity works hard to raise funds and support families through difficult times and it is with heartfelt thanks that we welcome a new patron who will help us to raise the profile and help us in our efforts. Julian Lloyd Webber’s patronage and comments also underline the recognition that our volunteers and supporters deserve for their hard work to date in promoting the Charity’s work to fund important research.”-ends-Notes to EditorsAbout Action DuchenneAction Duchenne (formally Parent Project UK) was set up by Duchenne families in 2001 to promote new research for a cure for Duchenne. The charity has a strong record in funding research and has to date funded 8 major projects costing £800,000 and has lead the £1.6m DoH funding of the MDEX project. These projects have enabled much needed early work to be completed on exon skipping and other therapeutic approaches.Action Duchenne holds an international conference every year to bring together researchers and families to exchange new research developments and provide a vital meeting venue for scientists.In 2005 Action Duchenne launched the Duchenne Registry, the first National Duchenne database that holds gene information of people living with Duchenne and can be used to speed up the recruitment of patients for clinical trials.In 2006 Action Duchenne launched a comprehensive learning and behaviour toolkit for use by parents and education professionals.For more information please visit:www.actionduchenne.orgEditors ContactsNick CatlinCEO, Action DuchenneTel: 0208 556 9955Email: [email protected] WestPR Artistry LimitedTel: 01491 639500email: [email protected] World-renowned cellist Julian Lloyd Webber pledges support for Action Duchenne, the Duchenne Muscular Dystrophy CharityFamous musician becomes latest patron for Action Duchenne, the Charity that supports sufferers and families of Muscular DystrophyJulian Lloyd Webber, the experienced musical authority and world-renowned cellist has become a patron of Action Duchenne, the Muscular Dystrophy Charity. The chair of the British Government’s In Harmony programme, Julian Lloyd Webber has announced his support of the charity, set up in 2001 to fund research and support sufferers and their families of the disease. Lloyd Webber joins an impressive list of patrons – actors and famous professionals – including Helen Bonham Carter, Tim Henman, Maureen Lipmann, Lloyd Honeyghan, Lord David Puttnam and Bryan Robson, OBE. Advertisementcenter_img About Howard Lake Howard Lake is a digital fundraising entrepreneur. Publisher of UK Fundraising, the world’s first web resource for professional fundraisers, since 1994. Trainer and consultant in digital fundraising. Founder of Fundraising Camp and co-founder of GoodJobs.org.uk. Researching massive growth in giving. Howard Lake | 21 May 2009 | News Tagged with: Celebritylast_img read more

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Algerian fixer completes 100th day in provisional detention

first_img News News AlgeriaMiddle East – North Africa Condemning abusesProtecting journalists Judicial harassmentImprisonedFreedom of expression Harassment of Algerian reporters intensifies in run-up to parliamentary elections RSF_en May 18, 2021 Find out more Receive email alerts AlgeriaMiddle East – North Africa Condemning abusesProtecting journalists Judicial harassmentImprisonedFreedom of expression Help by sharing this information Follow the news on Algeria to go further Reporters Without Borders (RSF) is appalled by Algerian freelance journalist and fixer Saïd Chitour’s prolonged detention without trial. Chitour, who works for such international media as the BBC and Washington Post, completes his 100th day in detention today. Arrested by intelligence agents at Algiers international airport on 5 June and incarcerated in the capital’s El Harrach prison, he is alleged to have passed confidential documents to foreign diplomats. He is being held under article 65 of the penal code, which provides for “life imprisonment for anyone who, with the intention of passing them to a foreign power, gathers intelligence, objects, documents or processes whose compilation and use are liable to harm the nation’s defence or economy.” The request for his release that his lawyer filed at the end of July has been rejected. No trial date has so far been set. “One hundred days of provisional detention are 100 days too many, 100 days of incomprehension and injustice, because there are no grounds for keeping Saïd Chitour in prison,” RSF said. “When provisional detention is extended without any reason and without a trial date, the detention becomes arbitrary and the principle of the presumption of innocence is flouted. We call for Chitour’s immediate release.” According to the authorities, no date has been set for a trial because they are still investigating the case. In a report entitled “Algeria, the invisible hand of power over the media,” RSF describes how the authorities use the threat of pre-trial detention to intimidate journalists, citizen-journalists and media workers. Algeria is ranked 134th out of 180 countries inRSF’s 2017 World Press Freedom Index. Algeria : Reporter jailed after covering Tuareg protests in southern Algeria News September 12, 2017 Algerian fixer completes 100th day in provisional detention May 12, 2021 Find out more Organisation Algeria pressures reporters by delaying renewal of accreditation News April 29, 2021 Find out morelast_img read more

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Donegal County Council to introduce car parking charges around the County

first_img Facebook Donegal County Council to introduce car parking charges around the County Google+ Gardai investigate deaths of two horses on the N56 News Pinterest By News Highland – December 19, 2011 Andrew McGinley says his children are getting him through life Previous articleDeputy McConalogue calls for inquiry into Raphoe Diocese abuseNext articleHundreds turn out for protest in Letterkenny News Highland Facebook LUH still not ready to restore IT systems The Council is looking to introduce charges for parking in a number of towns across Donegal.Six towns are to be considered for the charges in the first quarter of 2012.A further four towns that already charge for parking are to see charges increased.Donegal County Council is proposing to introduce car parking charges in Carndonagh, Dungloe, Falcaragh, Killybegs, Milford and Moville.Whether or not charges will be introduced or not will first be discussed with elected councillors for the areas affected.It is envisaged that where car parking charges are introduced, the monies raised would be ring fenced for local road upkeep and improvements in the towns that generate the money.The council has highlighted the importance of  appropriate traffic management being introduced to accompanied car parking charges.Meanwhile it will cost more to park in Ballyshannon, Donegal Town and Ballybofey/Stranorlar.Early next year the cost per hour is set to increase by 10 cent – this will bring parking up to 40 cent per hour in existing car parks and 60 cent per hour on the streets.Donegal County Councillors will have the final say on the council’s proposals.center_img Twitter WhatsApp Google+ RELATED ARTICLESMORE FROM AUTHOR Donegal retains 14 Blue Flags, Lisfannon is not restored Lárionad Acmhainní Nádúrtha CTR to take part in new research project Twitter WhatsApp Pinterest Gardai investigate Castlefinn burglarylast_img read more

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Gaelic football world record attempt

first_img Today is the 30th anniversary of Eddie Fullerton’s murder RELATED ARTICLESMORE FROM AUTHOR Twitter Three Fermanagh men will try to create history this weekend as they along with 39 other footballers aim to play in a 24-hour long game at Tyrone’s Garvaghey GAA Centre starting this Saturday January 7th at 11am and finishing on Sunday January 8th at 11am.The ‘Marathon Match’ in partnership with O’Neill’s International Sports and Michaela Foundation will see two teams go head to head for the total of 24 hours and the 3 selected Fermanagh men are – Eoin Maguire (Derrylin O’Connell’s), Mark Gallagher (Belnaleck) and Niall Burns (Derrygonnelly).The general public are all encouraged to come along and watch the game which hopes to create a Guinness World Record for the longest game of Gaelic football. Gardai investigate Castlefinn burglary Google+ Pinterest Andrew McGinley says his children are getting him through life WhatsApp Twitter News Facebookcenter_img WhatsApp By admin – January 3, 2017 Previous articleSchubert could be back with Derry – GAA star Bradley signs with ColeraineNext articleDonegal U-21s face Sligo admin Gaelic football world record attempt Donegal retains 14 Blue Flags, Lisfannon is not restored Pinterest Facebook Google+ Disruption to cancer service will increase mortality – Oncologist Hospitalisations rise as Donnelly suggests masks will stay ’til autumnlast_img read more

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New initiative in Candonagh Hospital to certify standards of end of life care

first_img Today is the 30th anniversary of Eddie Fullerton’s murder Gardai investigate Castlefinn burglary Andrew McGinley says his children are getting him through life Twitter Disruption to cancer service will increase mortality – Oncologist Google+ Donegal retains 14 Blue Flags, Lisfannon is not restored RELATED ARTICLESMORE FROM AUTHOR A new initiative is to be set up in Carndonagh Hospital to certify the standards of end of live care in the hospice ward of the hospital.The ‘Hospice Friendly Hospitals’ programme is an initiative of the Irish Hospice Foundation which seeks to prioritise palliative and bereavement care within hospitals for both patients and their families.Speaking to Greg Hughes on todays Shaun Doherty Show, Carn Liaison Chairperson, Dr John Madden says the move will solidify the excellent services which are already in place at the facility:Audio Playerhttp://www.highlandradio.com/wp-content/uploads/2016/05/carnhospital1pm.mp300:0000:0000:00Use Up/Down Arrow keys to increase or decrease volume. Facebook Google+ New initiative in Candonagh Hospital to certify standards of end of life carecenter_img Previous articleUpdate: An Post issue statement of sorting offices in North West DonegalNext articleReports suggesting Paul Durcan will not be available for Donegal admin Facebook Twitter By admin – May 3, 2016 WhatsApp Pinterest WhatsApp Homepage BannerNews Pinterest Hospitalisations rise as Donnelly suggests masks will stay ’til autumnlast_img read more

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Taoiseach delivers speech at this years MacGill Summer School

first_img Gardai investigate Castlefinn burglary Disruption to cancer service will increase mortality – Oncologist By admin – July 18, 2016 Taoiseach Enda Kenny has delivered his speech at this years MacGill Summer School.Addressing attendees, the Taoiseach said that 2016 would be remembered as a time of great change – both in the politics of this country and in the wider political environment, when the people of the United Kingdom voted to leave the European Union.In relation to Brexit Mr. Kenny said the stakes have always been higher on this issue for Ireland, than for any other EU Member State.”We were very active throughout this entire process in engaging with the UK Government, and with our EU partners, outlining our concerns and our interests.We are continuing to do that”.The Taoiseach said the Government fully recognises that the outcome of the UK referendum creates particular concerns in Northern Ireland.”We will work all the harder in this post-Referendum period to ensure that the benefits of the peace process in Northern Ireland are preserved and that we continue to build on and develop areas of cross-border co-operation.Ireland is in an important position given the strength of our relationship with the UK on one hand and our contentedness to the EU on the other”.He concluded by saying his primary goal is Ireland’s national interests and that goal will be foremost in any discussions: with the UK; with our EU partners; and between the EU collectively and the UK. Previous articleHard border between Donegal, Derry & Tyrone would be disastrous – MurrayNext articleDonegal Sinn Féin meeting tonight to plan for the future of the Party admin Homepage BannerNews Pinterest Google+ Twitter RELATED ARTICLESMORE FROM AUTHOR Andrew McGinley says his children are getting him through life Pinterestcenter_img Google+ WhatsApp Facebook Hospitalisations rise as Donnelly suggests masks will stay ’til autumn Twitter Today is the 30th anniversary of Eddie Fullerton’s murder WhatsApp Taoiseach delivers speech at this years MacGill Summer School Donegal retains 14 Blue Flags, Lisfannon is not restored Facebooklast_img read more

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Moya Doherty named Donegal Person of the Year

first_img Moya Doherty has been named as the Donegal Person of the Year. The co-founder of ‘Riverdance’ will be presented with the coveted award in Dublin on March 7.Ms Doherty, is a native of Pettigo but grew up in Dungloe.She succeeds Liam Ó Cuinneagáin from Glencolmcille. She follows in the footsteps of people such as actor Sean McGinley, Packie Bonner, Daniel O’Donnell, Jim McGuinness and Brian McEniff who have won the award. Members of the Donegal Association in Dublin who organise the event made the announcement at the Mansion House. Ms Doherty, was recently appointed as the Chairperson of the new RTE Board. As well as her achievements with Riverdance, Ms Doherty was a founding member of radio station Today FM.She is married to fellow Riverdance entrepreneur John McColgan. Donegal retains 14 Blue Flags, Lisfannon is not restored Moya Doherty named Donegal Person of the Year Facebook Google+ Twitter By News Highland – January 27, 2015 Pinterest Gardai investigate Castlefinn burglary Today is the 30th anniversary of Eddie Fullerton’s murder Facebook Hospitalisations rise as Donnelly suggests masks will stay ’til autumncenter_img Andrew McGinley says his children are getting him through life RELATED ARTICLESMORE FROM AUTHOR Pinterest WhatsApp Homepage BannerNews Previous articleMcMahon one of five to leave Tyrone panelNext articleSnow and ice warning issued for Co Donegal News Highland Google+ Twitter Disruption to cancer service will increase mortality – Oncologist WhatsApplast_img read more

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UPDATE: Three youth charged in stabbing near Ithaca Commons

first_img ITHACA, N.Y. — Three people under the age of 17 have been charged with gang assault and assault after police say they stabbed someone near the Ithaca Commons multiple times Friday evening.A 24-year-old Ithaca resident was stabbed several times at about 6:30 p.m. Friday, Dec. 7 on the 100 block of North Cayuga Street. According to police, the man was bleeding “profusely from the face and back.” On Monday, Public Information Officer Jamie Williamson said the man remains in “critical but stable condition,” at a trauma center he was flown to.Police have arrested three individuals who are under 17. Due to their age and recent Raise the Age laws around youth offenders, Williamson said they cannot release the names or ages. They have been charged with first-degree gang assault and first-degree assault, both Class B felonies.Williamson said they worked with the Tompkins County District Attorney’s Office to navigate Raise the Age legislation, which raised the age of juvenile delinquency to 17 in October. Williamson said it was a learning process and impacted what information they can release, where the youth have to be arraigned, and where they can be interviewed. They have also been sent to different detention facilities based on their ages, Williamson said. Your Crime & Courts news is made possible with support from: A jacket in the area roped off behind tape on the 100 block of North Cayuga Street. (Photo by Jacob Mroczek/The Ithaca Voice)Police roped off an area of North Cayuga Street on Friday after the victim had been transported for medical care. (Photo by Jacob Mroczek/The Ithaca Voice)Police say they have not developed information on a motive, and the attack appears to be random. Williamson said have not developed information that would suggest the victim and attackers knew each other.Ithaca Police, Ithaca Fire and Bangs Ambulance responded to the scene just after 6:30 p.m. At 9 p.m., police were still on scene and had taped off an area on the 100 block of North Cayuga Street near the Clinton House, as well as the driveway beside the Clinton House. State police also assisted with the investigation.Williamson said officers and investigators “did a great job … to put the pieces of the puzzle together” and to make sure the victim received appropriate care. “In regards to the investigation, our officers worked so well in locating the suspects and navigating through these new Raise the Age laws.”The three suspects were arraigned in Ithaca City Court and are due back in court Dec. 10. Two subjects were remanded to a Juvenile Detention Facility and the other subject was remanded to a Specialized Secure Detention Facility. Kelsey O’Connor Tagged: crime, ithaca commons, raise the age, Stabbing Kelsey O’Connor is the managing editor for the Ithaca Voice. Questions? Story tips? Contact her at [email protected] and follow her on Twitter @bykelseyoconnor. More by Kelsey O’Connorlast_img read more

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Cornell will hold service Tuesday to remember student Antonio Tsialas

first_imgThe service will be held from 4:30 to 5:30 p.m. Tuesday, Oct. 29, at Anabel Taylor Hall at 548 College Ave., Ithaca. A reception will follow the service in the Founders Room at 114 Anabel Taylor Hall. Employees may call the Faculty Staff Assistance Program at 607-255-2673. The Ithaca-based Crisisline is available at 607-272-1616. For additional resources, visit caringcommunity.cornell.edu. Anna Lamb is a reporter for the Ithaca Voice.Questions? Story tips? Contact her at [email protected] More by Anna Lamb Tagged: cornell university, remembrance service Anna Lamb Support services are available to all members of the Cornell community. Students may consult with counselors from Counseling and Psychological Services (CAPS) by calling 607-255-5155. Students may speak with a peer counselor by calling EARS at 607-255-3277. Emergency responders found Tsialas dead Saturday night in Fall Creek gorge after an extensive search, according to Cornell University Police. Tsialas had been missing since Thursday. Following the initial investigation, Cornell University concluded that “no foul play is suspected.”center_img Tsialas was from Miami, Florida, and was an undeclared freshman student in the College of Arts & Sciences at Cornell. He was described as a “thoughtful and smart student” who was naturally outgoing, according to a letter from Ryan Lombardi, vice president for student and campus life. Tsialas was actively involved in the Cornell Mundial F.C. club soccer team and had recently become a campus tour guide.  ​​​ A GoFundMe page created two days ago has raised more than $30,000 for the family for funeral expenses. According to the page, “All funds raised will go directly to the family for funeral expenses or to Ransom Everglades (his high school soccer team) for a memorial, depending on the wishes of the family.” ITHACA, N.Y. –– The Cornell University community will come together to remember first-year student Antonio Tsialas. A service of remembrance will take place Tuesday afternoon in the chapel of Anabel Taylor Hall on Cornell’s campus.  As of Tuesday morning, a spokesperson for Cornell said the university has no additional information about the circumstances of Tsialas’ death. (Screenshot from GoFundMe Page for Antonio Tsialas)last_img read more

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Public nursing homes in Donegal paid 81% more than private ones

first_img WhatsApp Public nursing homes in Donegal paid 81% more than private ones Google+ DL Debate – 24/05/21 RELATED ARTICLESMORE FROM AUTHOR Facebook WhatsApp Harps come back to win in Waterford Pinterest Journey home will be easier – Paul Hegarty AudioHomepage BannerNews Public nursing homes in Donegal are being paid 81% more than private or voluntary homes.That’s according to latest figures from the HSE which revealed that the average fee payable to 11 nursing homes in the county under the Fair Deal scheme is €1,553 per person, per week as of January 2019 while during the same period the fee payable to private of voluntary homes was €858.Under the Fair Deal scheme, private and voluntary nursing homes are required to negotiate fees payable to them while fees payable to HSE homes are not subject to the same regulations.Tadhg Daly, CEO Nursing Homes Ireland says the review of the Fair Deal scheme must be published without further delay:Audio Playerhttp://www.highlandradio.com/wp-content/uploads/2019/06/dalydfgdgdfgd1pm.mp300:0000:0000:00Use Up/Down Arrow keys to increase or decrease volume.center_img Pinterest News, Sport and Obituaries on Monday May 24th Previous articleAmber Barrett goes pro in CologneNext articleConcern over no elections for Udaras board News Highland By News Highland – June 18, 2019 Twitter Google+ Derry draw with Pats: Higgins & Thomson Reaction FT Report: Derry City 2 St Pats 2 Facebook Twitterlast_img read more

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